Myotonic Dystrophy Resources & Information
When Living with Myotonic Dystrophy Requires More
MyoVibesBlog is a personal blog that shares insights and information about living with Myotonic Dystrophy. It aims to provide support and resources beyond what friends can offer. The blog offers a platform to connect with the Myotonic Dystrophy community and raises awareness about the condition.
Helpful Websites
Check out these recommended websites for more information and support:
https://www.facebook.com/groups/150128601730709
https://www.mda.org/disease/myotonic-dystrophy
https://my.clevelandclinic.org/health/diseases/24516-myotonic-dystrophy-dm
https://www.australiannmdregistry.org.au/type-of-diseases/myotonic-dystrophy/ (for users within Australia)
Supportive Organizations
Explore these organizations that offer assistance and guidance:
The Muscular Dystrophy Association
Neruromuscular WA
Informative Books
Discover these books that provide valuable insights and knowledge about Myotonic Dystrophy:
PETER HARPER Myotonic Dystrophy - The Facts 2002 SC Book
Muscular Dystrophy and Other Neuromuscular Disorders Hardcover
Muscular Dystrophy Hardcover